Monday, August 25, 2014
NICU Day 6
Let me back up to Saturday, Day 4.
Myles was doing SO well post surgery that the Doctors and surgeons felt they should try to extubate him from being on the ventilator. They did so before we left for the night. We could tell he was struggling a bit to learn how to take good breaths, but they didn't seem overly concerned as we left for the night to spend time with Maelyn and Levi. After I had put our kids to bed I called the NICU nurse to check in on Myles.
They had JUST had a bit of trouble with him breathing, and felt he was working too hard. They had to re insert his breathing tube. This was very hard news to take, especially being so far away from our baby.
The next day, Sunday, Day 5, I went alone to be with Myles while Matt went with the kids to church and our church picnic later. When I arrived Myles was resting very comfortably, and basically just recooperated and rested all day. He was able to be weaned from all but one pain med left from surgery. He was still visibly puffy in the face from all the fluids he was given during surgery. There was talk of trying to extubate again on Monday since he was rebounding so nicely.
This morning was Day 6.
We called before making the drive in ( Children's Hospital of Wisconsin is about a 40 min drive for us).
His nurse told us he had a restful night and was very stable.
When we arrived we received the news that his temperature had taken a very small rise, but just out of the range they are comfortable with. This meant they were worried about possible infections from sites from surgery. At this point he still had 2 chest tubes in. They worried about infection to those sites, as well as to his lungs. They did some blood work, and the preliminary results showed no infection. His breathing continued to be good, however. As the day went on, his temp stayed below that marker of concern where it had been. They were able to take out one of his chest tubes, which made us very happy to see him more comfortable. During the day it was also decided to hold off on removing that breathing tube today as he clearly was showing us that he just needed a bit more time to re cooperate from surgery.
Right before we left to come home for the night, he had about an hour of wake time. He hadn't been this awake since before surgery, so this was a big treat to us as well.
The day started a bit discouraging, but we thank God for the heartfelt prayers of so many saints. We know God is at work because of many of you! Thank you so much.
Please pray for Myles as tomorrow they attempt to extubate once again. We are naturally pretty nervous because of the results he had last attempt. We just want the best for our little guy! We know with God, all things are possible!!
( Myles, 6 days old)
Thank you for your love and prayers!
~ Missy
Friday, August 22, 2014
And He's Off...
The only way I can think to explain it is how Peter must have felt as he walked on the water to Jesus. I'm sure he felt the wind and waves all around him. I could imagine the feeling of the spray hitting his face, soaking his beard. I'm sure he felt the surreal feeling too that he was doing something that was beyond himself. I'm sure the waves were hitting his legs and crashing onto his back. I can imagine that as he stared into the eyes of the one who called him onto the water that the crashing wave felt like a gentle breeze amid the peace found in the eyes of his friend and Savior.
We aren't ignorant of the severity of what Myles is going through but as we keep our focus on Christ he gives us great peace. Are we scared? Yes, but we know that God has a plan. Not only a plan for us but for our entire family. We are praising him in the midst of the waves of this storm for the great things He is doing and will do. We just want to continually thank you for your prayers and ask that God keep being praised and glorified through this.
"The LORD shall fight for you, and ye shall hold your peace" Exodus 14:14
" O God the Lord, the strength of my salvation, Thou hast covered my head in the day of battle." Psalm 140:7
-Matt
Thursday, August 21, 2014
NICU Day 2
Maelyn and Levi are doing as well away from us as Myles is doing with us. That is a huge burden that has been carried mostly by their Grandma Gordon so far. We got to have family night with them tonight since Missy has been discharged from the hospital and we live too close to stay in the Ronald McDonald house. Living too close has turned out to be a good thing (at least for today). We got home in time to eat dinner with them and take them to the ice cream shop for some Superman ice cream and just hug them and kiss them a lot. We missed reading to them before bed and singing and praying with them just before they fall asleep. They are just as much of a blessing to us as Myles and they are doing fantastic while Myles needs us.
There are so many things that we took for granted with our other two children that with Myles we can only give God the glory for. We praise Him continually throughout this journey and ask you to as well. I do continue to ask you to pray for Myles, especially tomorrow, but also please be purposeful to praise our great God and Savior who continues to bless us. We also cannot thank you enough for your prayers. We know that It is because of your prayers that Myles is doing so well and it is very humbling and moving to know how many people are praying on behalf of Myles and our family. Thank you so much on behalf of our family. To God be the praise and glory (Eph. 1:12).
Wednesday, August 20, 2014
Happy Birthday Myles
~ Missy
NICU Day 1
Where to start?
Myles is doing so well! We slept so good. We were able to have a good nights sleep and some breakfast. We headed down to the NICU and found Myles doing as well this morning as last night. His breathing tube is still only giving him "room air" and is even getting the hiccups still. They ran a list of tests overnight, blood tests, x-rays, EKG, and many more and they all came back with very positive results.
The team of surgeons came to check on Myles last night but we missed them in the morning and found out after lunch that his surgery would be at 8:00 am on Friday and that they were quite optimistic that they could use a less invasive type of surgery to move his organs where they need to be and fix the hole in his diaphragm.
Another blessing was the fact that they not only allow us to touch Myles they encourage it. Our NICU nurse even waited a few extra minutes to do a few things for Myles so we could finish dinner and make it down to help her. We are so thankful to be able to feel him and touch him. He even likes to hold our fingers and it seems to help him stay calm.
The other good new was that his lungs needed suctioning. You may be thinking what I was...how is that good news? Well, his body is telling us that it does not want the tube in anymore, he wants to breath on his own. It's his body's way of trying to get rid of the tube (along with him trying to grab at it to the point they needed to put socks on his hands). After they suction his lungs he relaxes and falls back asleep.
The Lord continues to bless us more than we deserve (Psalm 81:10)