First Big Hurdle

Myles made it over the first hurdle, he is through surgery. They took him down to surgery about 8:00 am and we finally spoke with the surgeons just before noon. It was a really long wait, all we wanted was to hear he was done. The surgeon took us into a room to discuss the surgery and the more he spoke the more I smiled. The surgery went great. they were able to do the surgery with three small incisions and were able to close the hole without a patch, they just used stitches to close the hole.
Recovery has been good yet difficult. Myles is doing great, he is doing all the things he needs to. For us this has been a long and emotional day. Even in spite of how great it is doing it is hard to see you child (I'm sure at any age) recovering from surgery. He had a less invasive surgery and so many other positive things throughout but it was still surgery. We know god has a plan and we know God is sovereign but you come to a point where knowledge and theology don't take away the pain of the situation. That is where that same knowledge and theology coupled with experiential compassion make a huge difference. Just to know people are praying. It is great to be reminded of the truths of Scripture but it is such a blessing to not only hear "I'll pray for you" but to know that someone is  praying.
- Matt

6 months surgery clinic visit

Can you believe it's been nearly 6 months since our CDH journey began?

Last week we had the joy of returning to Children's Hospital where we had Myles' 6 month post surgery check up. Not too many CDH parents see these visits as a joy. We are beyond thankful for the way God miraculously healed our little boy. 

We had to get a follow up X-ray done on Myles to check on his lungs. 

He just took it all in stride and didn't even fuss until they had to tape his cheeks so they would be out of the way. Ha!! What a problem to have. 

Up in clinic, they weighed Mr. Myles fully clothed, and he was a whopping 18 pounds! Eating is clearly not an issue for him! 

We saw Dr. Lal who was more than pleased, once again.

We were told that we have no worries regarding his health, and that we can treat him just like our other 2 kiddos. In his words, "Forget this ever happened." 

Obviously, he knows this isn't possible, but for all practical purposes, we don't need to freak out unnecessarily when Myles develops a cold.

God is just so good. So kind.

I want to share the X-rays So you can see this miracle for yourselves. 

Here is Myles chest before repair surgery. 

You can see his heart was being pushed all the way over to his right side. The small space next to his heart on the left side, is his left lung. Squished. His right lung isn't even visible, but was being crowded by the heart. Below the lung on his left is a round space, which is his stomach. It shouldn't be there. Which was the problem. ( you can see the feeding tube there) 

Now....here is the X-ray from last weeks visit. 

Heart in the middle, and two fully functional, fully normal sized lungs, with stomach down below the diaphgram where it should be. Praise God. 

Myles is as healthy as any other baby his age, and we know Who to thank for that!! 

"O sing unto the Lord a new song; for He has done marvelous things: his right hand, and his holy arm, has gotten him the victory." Psalm 98:1 

~ Missy